Sorry Folks, it's been a long while!
Summary.... the best way to sum things up is to say I had a PICC line in the spring/summer after having been hospitalized in late March 2011 due to a reaction to such a high dose of antibiotics to attempt to kill of the Lyme cells. After receiving the PICC line I received IV antibiotics for about 3 months until my line became infected. The highest my CD57 level got was 148. Our goal is over 200. Post the PICC, my CD57 level has continued to drop and as of my appointment this last week it was down to 99. The lowest it has ever been was 83.
As you can probably guess, I am depressed. I am unable to drive so I am totally dependent on others to go anywhere. My parents, mother-in-law, and husband have been driving me to appointments and occasionally out to eat or a store. I have a bad case of cabin fever and am craving a vacation. Hopefully Jeff and I can go to the beach later this year. Maybe for our 10 year wedding anniversary in September.
My doctor is presently working on developing a medication protocol of antibiotics that I hope to begin soon. I have been off of antibiotics since October 2011; my year of treatment mark.
On November 5, 2011 we celebrated my sister Jen and my new brother-in-law, Brian's wedding. I was blessed to be their matron of honor and I was able to walk down the aisle without my quad cane. I was even able to dance that night at the reception. It was an answer to prayer.
Recently, I have started having spells of blurry vision and even blacking out. I fell down the stairs twice last weekend. Fortunately, I was just sore and had no major injuries.
It's my goal to be more active and keep you better posted on my diagnosis of Chronic Lyme's Disease. I hope that if you know anyone with Lyme's this blog can provide them with education and hope. Also, if you have a chronic disease of some sort share it with me. I would love to be in prayer with you. For I know we are in the Healing Hands of Our Savior, Christ Jesus.
With Love - Sydni
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