Monday, March 19, 2012

Good News!!!

I am so excited to tell you that my doctor just emailed me with good news.  After 7 weeks of oral antibiotics, Praise the Lord, my CD57 level is at 135!  This is the best it has ever been with oral medication.  The highest it's ever been with 148 and that was on the PICC line IV antibiotics.  That's only a 13 point difference, which is amazing.

I am very blessed because I have talked to other Lymies that are getting CD57 scores between 16 - 40.  I've realized that even though I am in pain and feel really sick, it could be worse.  

God is not evil.  He didn't curse me with this disease.  God is LOVE!  If it weren't for my relationship with Jesus Christ, I would not be able to fight this trial.  I personally don't have the strength to survive this on my own, but with Jesus, He strengthens me and carries me through this nightmare.  

I am scheduled to see my doctor next Monday, so if I learn anything new I will pass it on to you.  I thank you for your love, prayers, and support.

Love - Sydni

Tuesday, March 6, 2012

Feeling Lousy

I have been feeling lousy lately.  I don't know if it is from the antibiotic change, the crazy cold one minute warm the next weather, or just feeling overwhelmed to get things done.  Tomorrow I return to the Neuro-Psych Doctor about the testing I had in February.  I must admit that I am nervous.  If things come back with a diagnosis, then we will know the problem and hopefully how to treat it.  But, if things come back with no diagnosis or a very minimal idea for why this is happening then I'm left wondering.  The question would be what is causing the cognitive and memory problems.  I would be lying if I said I wasn't anxious.  Worst case, I see my counselor on Friday so I can vent then. Depending on what I find out tomorrow I just might text message her.  My goal is to send a blog message out to all of you tomorrow.  Please keep me in your prayers and thoughts.  Thank you & Much Love - Sydni